TCI: Youth and Parent/Caregiver

Got Transition – What is Health Care Transition?

Health care transition is the process of changing from a pediatric to an adult model of health care. The goal of transition is to optimize health and assist youth in reaching their full potential. To achieve this goal requires an organized transition process to support youth in acquiring independent health care skills, preparing for an adult model of care, and transferring to new providers without disruption in care.  This site has an extensive list of resources related to health care transition for youth, families and providers. It provides new and innovative strategies for improving transition from pediatric to adult health care.

Maryland Children and Youth with Special Health Care Needs Resource Locator

This is an easy to use online database designed to help families of children with special health care needs, youth and providers find needed resources. It is accessible in over 50 languages, and offers user-friendly features including helpful search features, interactive maps and directions to each resource, and is 508-compliant for those with visual impairments.

Transition to Adult Health Care

Pacer’s National Parent Center on Transition and Employment: Healthcare transition focusing on building independent health care skills, including self-advocacy, preparing for the adult model of care, and transferring to new providers.

A Young Person’s Guide to Health Care Transition (PDF)

Offered by the National Collaborative on Workforce and Disability: A Young Person’s Guide to Health Care Transition – making the transition from pediatric to adult health care.

Transition Planning Guide (PDF)

The Maryland State Department of Education Transition Planning Guide focuses on the movement of your child with disabilities from school to appropriate postsecondary outcomes and supports the preparation for moving on to the next stage in life.

Ten Steps to Health Care Transition (PDF)
From the Maryland Consortium for Children with Special Health Care Needs – How families can help their child with special health care needs. plan the move from child-centered to adult-centered health care systems.

Emergency Preparedness for Children with Special Needs (PDF)
Preparing for an emergency is difficult for any parent, and as a parent caring for a child with special needs, you have extra things to think about.   Here are a few tools to help you be prepared, in case of an emergency.

New Video Series: Re-envisioning Care for People with Involved Disabilities
A new Institute for Healthcare Improvement Open School video series explores how to improve primary care for people with involved disabilities, which may include complex medical, social, behavioral and physical functioning needs. Each video in the four-part series features patient and clinician leaders who are designing innovative approaches for more accessible and responsive care. In the first video of a four-part series, people with involved disabilities share the barriers they face in accessing primary care in traditional settings. The foundation for building a primary care delivery system that is accessible and responsive requires a different set of values.

What are the eight waiver programs in Maryland? Click here to learn more.

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